#invisibleillness 656.137K Posts

In the midst of The Dream Plan's release, I still managed to add a few new designs to the shop, including this one. 💙 Get it as a 5x7" or 8x10" print or printable at ShopStreetlights.etsy.com 🌌
#30DaysOfGratitude12 Dec 13th Day 13 What abilities are you grateful for? I am grateful for the ability to choose. I get to choose what matters and what doesn’t. “Remember, you alone get to choose what matters and what doesn’t. The meaning of everything in your life has precisely the meaning you give it.” ~ marcandangel #marcandangel #grateful #gratefulforchoices #gratefulforlife #gratitudechallenge #gratitudejournal #gratefulheart #merrychristmas #yoga #yogaformindbodyandsoul #yogaforspoonies #spoonieyogatribe #spoonie #spooniewarrior #invisibleillness #chronicillnesswarrior #meditation #selflove #selfcare #spirit #journey #followyourownpath #positivevibes #raiseyourvibration #loveforalllivingthings #weareallconnected #loveistheanswer
Looking back through photos&you come across those shots you forget you ever even snapped. You remember all the things you from that time. Like this photo. I was moving, everything still in boxes. Before I had 2 cats. Traveling a lot. Working on business. I was still able to workout every.day. Never in my life would I have thought I'd be dealing with a condition that would impact my body, not long down the road.. Most specifically, my Muscles. Which, in turn, has a domino effect&plays a toll in Everything else that goes on in how I feel&the things I'm able to do. I loved my body&where I was going at this point, tho I always had a goal to do better, be better. I won't lie to you all.. I'm still struggling with where this journey has brought me&how it has impacted my body. I know so many look at me as the fit girl who can still do all the things. But, I can see the changes. Boy... Can I see the changes😩 I can feel the changes.. That's even worse - to have been so strong&have no issues lifting anything at all - to struggling with the simplest of things. Especially when people still see you as the person you've always been. [And, of course I'd rather still be seen that way] Have these things caused me to get into a slump&feel like shit about myself. I'd be the world's biggest liar if I said it didn't. What sort of example would I be setting to all of you, current, past and future clients that come to me for help with change in their lifestyle, fitness&nutrition. I'm human. We all are. Maybe I've got a little bit of a different obstacle thrown into my way than you - but that doesn't mean you don't have just as many struggles to overcome too. We all have our things to battle. We all need someone to help us through. I've been hard on myself&trying to do it mostly alone. I don't want you to feel that way. Period. I know I'm stubborn.. but, in the end.. nobody truly wants to do it alone. Here's a promise to you.. I want you to know I'm just a quick message or call away. #itsbrielle #phamily #LegionOfBOOM #1stPhorm #CancunExperienceOfficer #CancunCEO #Cancún #InvisibleIllness
Thanks to a post by @makelemonadewithlupus I opened a RedBubble store to emphasise both my love for salt ( #pots) and my bitter disdain for societal conceptions of disability. All designs are available on a variety of tees, hoodies and spiral bound notebooks in a wide range of colours. . This is just something fun I've wanted to do for a long time as I can't find a good "Salty" tee anywhere. But if you're a salty, bitter bitch like me and want some uninspirational gear to say it feel free to check out The Salty Spoonie on RedBubble (redbubble.com/people/thesaltyspoonie/shop). . . . #mecfs #me #cfs #cfsme #spoonie #spoonielife #chronicillness #chronicallyfabulous #dysautonomia #butyoudontlooksick #spoonfighter #sensoryprocessingdisorder #spd #disability #criplife #crip #cripplepunk #cpunk #invisibleillness #ruraldisability #anxiety #MEaction #millionsmissing #thisiscfs #salty
Cute bag alert! Is it a Toiletry Bag? Medicine Pouch? First Aid Kit? You decide! Now 15% off! Use MERRYMEDS on our site. #firstaid #kidsbag #totebag #blog #toiletry
🔸️There are times when you just need the comfort of your mother. In times of grief, illness, sadness, she's always there. 🔸️To some, "mother" might mean Mother Earth; to others, your birth mother, or a other woman who gave you motherly comfort. 🔸️Myrrh nurtures the soul's connection to mother and to the earth and supports individuals who have experienced a disturbance to this bond. 🔸️Pair with frankincense in a rollerbottle and use to help combat depression and anxiety and promote emotional balance (roll a bit on your wrinkles too -- you'll thank me later😉).
Life isn’t always easy yet we seem to be pulled along in a society that expects us to always be ok. News flash!! We can’t always be ok, and there’s nothing wrong with that, do the best you can and that’s all that matters. #loveyourself #bethebestyoucan #itsoktonotbeok #chronicillness #painsucks #mentalhealth #lookafternumberone #bekindtoyourself #invisibleillness
Instagram @rockinchronic And YouTube. Started a page highlighting what I try with my chronic illnesses and will also be sharing my recipes. Sometimes it'll be informative, sometimes a laugh, but my wish is it'll be hope. Knowing we aren't alone and sharing knowledge is so important for our invisible illnesses. Also excited, Christmas came early, a new camera for doing videos. 🎄 I can retire my iPad mini camera. 🎅🏼 #hope #spoonie #chronicillness #chronicpain #invisibleillness #mecfs #fibromyalgia #dysautonomia #ibd #ibs #migraine #insomnia #servicedog #beachdog #christmaspresent
Opie: Let it snow, let it snow, let it snow! Today we had our first big Michigan snow storm of the season. My girl took Piper out to play in the snow for the first time and then I got a turn too! I love running and sniffing in the snow and Piper liked it too! Piper also went on his first outing to tractor supply store with my girl, trainer, and Dad. He did a great job being confident and being around new people. Piper also started learning pivot today while our trainer was over. Pivoting will help Piper seamlessly transition between being in front of my girl, at her side, or behind her. This is important for a future mobility service dog as it means Piper will always easily be able to be wherever he is needed to help our girl. As you could tell from the video yesterday nothing makes us happier than helping our girl! #opietheservicedog #servicepuppiper #servicedogintraining #vizsla #vizslapuppy #wirehairedvizsla #servicedog #workingdog #dogonduty #medicalalertdog #dogtraining #servicedogsofinstagram #respectthevest #dogsofinstagram #cardiacalertdog #pointer #hungarianvizsla #vizslasofinstagram #labsofinstagram #invisibleillness #disability #potsie #spoonie #chronicillness #dysautonomia #lupus #migraine #hashimotos
We interrupt this spoonie christmas challenge to announce some unofficial diagnoses... this isn't official but it's a start. Let's see where it goes. I have a multitude of tests coming, like an echocardiogram and a wearing a loop for a month. My electrocardiogram showed inferior ischemia but until I'm back on my vitamin regimen there's no use in bloodwork. Unsure what else to do about it. I definitely don't have blockages 🤷😂 #mysteryillness #mysterydiagnosis #chronicillness #chronicpain #chronic #fatigue #mystery #staypositive #chronicillnesswarrior #warrior #community #disability #spoonie #spooniestrong #invisibleillness #spreadawareness
Well so much for that hope for good lab work. My hospital standard is seeing your HGB around a 12 as a "normal low". Blood transfusion (2 units) and iron infusion tomorrow, they really jumped on this. Also, a series of brain thoughts after seeing this along with the other results that came back. The good news, I really am getting better at picking up when my body is sending a significant "F you!" to me. 😂😩
Nym got to enjoy a lot of zoomies and fetch today! Been flaring the past few days so energy's low, but brought him to a grassy lot nearby to work off some energy and have outdoors fun. Hope you're all staying warm!
Had to double up today! So day 9/21 and 10/21...Stretch and Balance of expansion week. I feel much stronger and more flexible even though I am still tight in my hammies. Loving the magic that is happening mind, body and soul. Breathing in the new and positives while breathing out the old, negative mindsets and old patterns. So very GRATEFUL 😍
I just posted this over on my art account ( @eryn.good ) but I wanted to post it here too! This is a project for my art class inspired by @annieelainey and @pansystbattie , two awesome disabled people you should definitely go check out 😊 · [Image Description: a black and white popart of a wheelchair user in a dress in front of the text: "The Future Is Accessible"] · #invisibleillness #chronicillness #chroniclymedisease #lymedisease #lyme #spoonie #posturalorthostatictachycardiasyndrome #dysautonomia #disabled #disability #wheelchair
Its precisely 2.08am, 🕑I cannot sleep, 😴I've been trying but failing! So many things going round in my head! 😕😔 Im sure I can feel another cold coming,🤧 my chest hurts 😷and I'm extremely wheezy! 😣 So... Im continuing with The Crown! 👑I've taken more pain relief 💊and shall hopefully fall asleep shortly!😪 3 small boys👬👦 to get ready👕👖 and take to school tomorrow! 📚🎒🚗 . . . . . #cantsleep #wheezing #chestpains #restless #busyhead #insomniasucks #insomnia #earlyhours #lowimmunesystem #fibromyalgia #chronicillness #chronicpain #invisibleillness #livingwithchronicillness #pain #sick #sickandtired #fibrowarrior #livingwithchronicillness #livingwithaninvisibleillness #fibrowarrior #fibromyalgia #painreliefnotworking #thecrown #monachy #queen #queenelizebethII
When you have literally some of the best friends ever you live that #squadgoals life you go take pictures with santa in matching hats and silly sweaters. I don't know what I would do without you ladies @aideen_esther and @vagabondvettech you are the best. You understand my lack of spoons and shitty days and you don't judge me for it. You are there when I need you through thick and thin. ❤️ You both. #spoonie #chronicillness #invisibleillness #chronicpain #lyme #lymedisease #eds #ehlersdanlossyndrome #besties #bestfriends
Infusion day! My girl receives these infusions every four weeks as treatment for her juvenile arthritis. The waiting room was all decked out for Christmas, so my girl got pictures of me in front of the Christmas tree. I was also a little antsy on the way home so my girl did a little mental game in the car! She had me hold various shapes/sized bottles. She only got a picture of me holding the meal replacement shake, though. On the way home we also stopped at a Walmart to get out and walk a bit. It was a long day and we’re glad to be home ❤️ #dog #servicedog #Labrador #golden #work #workingdog #illness #invisibleillness #chronicillness #strong #tail #paw #bark #determined #strength #smile #happy #canine #cci #independence #ball #bone #mobility #medical #medicalalert #assistant #assistancedog
Sharing a little #Christmas 🎄 #Cheer tonight from my recent trip to the Botanical Gardens. (love how you can see the cool bldgs in the near distance too #atl #city) —- —- #GA #georgia #organic #natural #ringgold #chattanooga #tree #lights #beautiful #color #twinkle #christmastree #botanical #botanicalgarden #piedmontpark #fun #ssoonthego #wow #stunning #awesome #music #lights
It's Hump Day 🐪 training with a #portacath has been tricky. It makes everything from Jumping to over head press difficult. I'm sure I will get use to it but for now I get to focus on slimming down my legs and growing a booty. PS when you find good booty pants you buy them in every colour 😏 #ibd #uc #invisibleillness #portacathgirl #ibdwarrior #bootygains🍑 #igrewitmyself😂
Spoonie Christmas Challenge Day 13... Support system?***** The first picture is of my sister and I. My sister is my very best friend. She had always been there for me through sickness and health, through good and bad, through tough and easy times. I told her husband when they got married that it was a package deal because that's how close we are. She is my number 1 fan, friend and supporter. The second picture is of my parents and I. I live with my parents. When I got to a point when I couldn't work anymore and applied for disability, they took care of me financially for 2 years. They are there for new no matter what. I am as blessed as can be with my family! **partner page** @mental.health.awareness_ #beatms #curems #cpap #sleepapnea #gastroperisis #disablednotunable #disabledbuttrying #degenerativediscdisease #fightingms #multiplesclerosis #mswarrior #staystrong #chronicallyill #chronicillness #chronicfatigue #spoonie #invisibledisease #invisibleillness #disabilityawareness #mentalhealthawareness
don’t ask me why she’s licking the table
When you live at the beach, or in my case the cliffs over the beach, you get to see this every night! Feeling lucky........ Just loving these sunsets. #makeup&maryjane #chronicpain #chronicillness #invisibleillness #chronicillnesswarrior #eds #edsdogs #eveningwalk #sunset #catalina #island #california #pictureperfect #nofilter #horizon #ofi #adventurebuddy #boxer #boxersofig
It's day 13 of the December #SpreadLove17 contest! 🎉 Write a post about somebody who lives far away who spreads love to you. Let's spread the love this December 💜 Remember to tag the hosts @TheUnchargeables and @spoonieessntls 🌟 so we can find your post! Scroll pics for instructions on how you could win! ❄ Sending Hugs, Char --------------------------------------------------- 🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio. ---------------------------------------------------- #TheUnchargeables #Spoonie #unchargeables #chronicillness #Spoonies #SpoonieLife #ChronicPain #ChronicFatigue #disability #chronicpainwarrior #InvisibleIllness #autoimmune #supportgroup #lowonenergy #lowbattery #contest #spreadlove #win #StrongerThanYouThink #chronicillnesswarrior #autoimmunedisease #fibromyalgia #raredisease #pcos #endometriosis #migraine #butyoudontlooksick
Liam is determined to be the best kitty nurse👨‍⚕️😸 EVER. He may not have thumbs, but he doesn't let that stop him. 😺😻🐈❤ Liam the Lyme warrior💚
The first time ever that I can’t shake these feelings off, they feel different? Stronger? Uncontrollable? This time I can’t see a recovery from my own mind. I try to keep busy working but when I stop for a second there it is, suicide weighting heavy on my mind & the more I try to silence it the more it screams. What is it I want? Not death? But peace, space, clarity. Am I weak for wanted an easy way out? When there’s a lot of people have it a lot worse then me? When really what have I got to feel like this for? Am I ashamed? Yes. Do I feel guilt for those around me? Yes. Why can’t there words be enough? Why can’t I accept people want me here? Is it because when your so low you can only see one way out? If I let my emotions take over I feel it in the pit of my stomach, the gut wrenching urge for everything to stop. Can I trust myself to stop? to control the emotions? Who knows? But it is what it is. 🤷🏼‍♀️ #mentalillness #spoonie #invisibleillness #fakeittillyoumakeit #breakthestigma #dontbesilenced #itsoktotalk #beopen #mentalhealth #awarenessmonth #awareness #mentalhealing #mentalhealthadvocate #openup #yournotalone #raiseawarness #depression #anxiety #anxietyquotes #depressionquotes #suicide #badthoughts #imstillme #darkness
Prepping for the holiday parties & Christmas shopping! 😜🎄 Never underestimate what it takes for someone to feel "normal". #invisibleillness #butyoudontlooksick #myastheniagravis #mgwontstopme #ivig #mgwarrior #fightlikeagirl
Doctor went ahead and prescribed B12 shots. I'm so ready to stop feeling so exhausted all the time! You know it's bad when taking a shower makes you tired. Haha! Pitiful. 🙃 Meet with the nurse Friday for her to show me how to do the injections. One shot per day for seven days, one shot once a week for three weeks, then once a month thereafter. I have to say, I'm a bit apprehensive about the size of this needle though. 😱 Meh oh well, I'll get over it...small price to pay to feel more normal again. Can't wait to say goodbye to that heard of elephants that's been sitting and pushing against my body. 😜 #shebelievedshecouldsoshedid #remission #crohnsdisease #ibdcantstopme #arthritis #spoonie #spooniesunite #spoonieforlife #invisibleillness #sickbutinvisible #chronicillness #ibd #arthritissucks #autoimmunedisease #ibdawareness #IBDvisible #entyvio
Many people with chronic illness believe they will never be able to lose weight because they cannot exercise. What many people don't realise is that weight loss is mostly about WHAT you eat, not how much you exercise. ↪Visit my blog to read my weight loss journey. You'll find it in the categories menu under Nemo's Kitchen. --------------------------------------------------- 🌟 Visit my blog! Chronicallyhopeful.com/-24kg --------------------------------------------------- #ChronicallyHopeful #mecfs #pwme #RoadToRecovery #Spoonie #theunchargeables #sickgirl #chronicillness #SpoonieLife #ChronicPain #ChronicFatigue #disability #chronicpainwarrior #pwme #InvisibleIllness #lowbattery #StrongerThanYouThink #chronicillnesswarrior #ButYouDontLookSick #flareday #housebound #SpoonieBlogger #ChronicIllnessBlogger
Want to know more about getting certified? Its easy to get your #Mmjcard with @azmmjdoc 😊 No Records? No Problem. We can take care of that, too! Call us: 602.277.6537 or visit us online at azmmjdr.com #mmj #prop203 #azmmj #cannabis #cannabiscommunity #cannabiscures #marijuanaeducation #marijuanadoctor #medicated #medicalcannabis #cbd #thc #knowledgeispower #mmj #prop203 #ChronicPain #InvisibleIllness #CannabisCard #CannabisClinic #naturalmedicine 📷: @azmmjdoc
so I got to see my #polycysticovaries for the first time today 😬😬😬 and on top of that, there is some suspicion I have #diverticulitis so I’ve got that going for me too - if anyone can give me any insight to either (or both) of these that’d be super totally awesome 😁😁😁 we all know what searching #webmd can do to a person’s sanity 🤪 #fitfibrochronicals #fitsisters #fibrosisters #spooniesisters #spoonieliving #spoonielivingapp #butyoudontlooksick #pcos #polycysticovariansyndrome #diverticulitis #medicalmystery #spoonie #spoonielife #spoonieproblems #lifeofaspoonie #justspooniethings #chronicillness #chronicpain #chronicfatigue #invisibleillness
I think the caption behind Liam and Chester encompasses my life with an almost 6 month old puppy and a 2.5 yr old forever young puppy. 😂 Liam plays innocent well! 😇 Photo cred: the amazing Stephanie @pawsitiveconnectiondt. Not only is she the best dog trainer, but she's also a superb photographer AND photo background designer to boot. Thanks for taking on the challenge of photographing these two crazies! ---------------------------------------------------------------------- #t1dlookslikeme #lazypancreas #diabetesawareness #diabetes #diabetestypeone #t1dstrong #type1diabetes #t1d #typeonediabetes #chronicillness #invisibleillness #raynauds #raynaudsdisease #servicedog #servivedogintraining #diabeticalertdog #diabeticalertdogintraining #spaniel #goldenretriever #puppy #mutt #australianlabradoodle #doodle #photography #dogtraining #pnw #pacificnorthwest #brothers #christmas #photoshoot
Living with chronic illness is hard, especially ones without and 'acceptable' visual quantifiers. It's isolating. It's debilitating. It often makes us feel like we're vanishing before everyone's eyes but no one really notices. This isn't an attention-seeking or sympathy-grabbing kind of post. It's just our reality. Chronic illness takes our lives as we knew them, piece by piece. Our livelihoods, our independence, our peace of mind. The best thing that you can do for the #spoonie in your life is to never stop seeing them - never forget that we are still here, even if we can't get out of bed or walk unaided. We just want to be seen and acknowledged. No one chooses to feel as though we are Mr. Cellophane but it's often what happens to us. #invisibleillness #chronicillness #autoimmunedisease #mentalhealthawareness
“To keep the body in good health is a duty...otherwise we shall not be able to keep our mind strong and clear.” - Buddha
My best friend from college, Maritess made this for me. Tess passed some years ago in a horrific accident. This is one piece of the poster. I smiled big when I found it the other day and framed it. It's been 17 years since she made this for me. The messages and the vibes ring even truer today. It's like she could sense the future. I am glad that I live the values we learned when we made pacts to become warriors for the positive. We studied paths for peace, various religions, history, protest, war, and walked in the rain. #travel #winner #leadership #vacation #peace #traveler #holiday #breath #wanderlust #health #chronicpain #chronicpainwarrior #pain #chronicillness #invisibleillness #love #endurance #survive #Inspiration #Motivated #SuccessQuotes #MotivationalQuotes #happy #fortune #Network # #meditation #photography #photo #yoga
Done the dusting but I still need to vacuum the whole house and mop the floors before my guests come over for my birthday tomorrow evening - and my in-laws house has a lot of floor space! . . . #Endoproelium #Endometriosis #Endo #EndometriosisWarrior #EndoWarrior #EndometriosisAwareness #EndometriosisAware #EndoAware #EndoSister #EndoMonster #EndoStrong #ChronicCondition #ChronicIllness #InvisibleIllness #PainLevelSquiggles #YouDontLookSick #Pain #Tired #Fatigue #FrozenPelvis #HouseWork #Cleaning
“I spent over a year wanting to share my own story but being too afraid. What if someone I know reads this? What if they don't look at me the same? That's the point, though, isn't it? Our experiences – raw and unfiltered – are what will shatter the stigma of mental illness... I was thirteen, a child, and already so burdened by body image. By the time I began freshman year of high school, I weighed eighty-six pounds. I was skeletal. But I was so far deep in my disorder that I couldn't see what was staring back in the mirror. At my regular checkup, my doctor gave me an ultimatum: put on at least ten pounds in a week, or enter an inpatient treatment center for anorexia.... Any time that you feel the weight of that darkness begin to creep over you, put your hand to your chest and feel. Feel your heart thrumming in your chest. Feel your lungs expand and contract with each breath you take. Feel the warmth of your skin under your palm. You're alive – don't let anyone or anything threaten that, least of all yourself. Push through the darkness, whether it feels like a transient cloud of fog or a blanket so thick you cannot see the light. The light is there, beyond the darkness, and it's waiting for you." • Click the link in our bio to read Rachel’s full story. • • Photo by: Jesse Volk
💕 Literally had the worst time at the doctors today. So apparently because I want off of my medications that are making me feel worse, my doctor didn't want to continue our appointment she angrily said "I'm not forcing you to be on these meds you can get off them" and then tried to walk away, so I asked about a medication I was recommended for my PTSD nightmares that are getting worse because she was walking out the door and she said "oh no you can't take that because of your blood pressure" and walked away.. Like cmon there has to be more options.. After that the nurse came in and checked me out.. I was so heartbroken I had so many more things to discuss and I was pushed aside because I didn't want to do things her way. Anyway I have another appointment with a different doctor and I'm hoping it goes way better then this 😥😥💕💕 . . . #spoonie #lifeimprovement #doctorsoffice #chronicillnesslife #thesimpsons #simpsons #aesthetic #sickgirlsclub #butyoudontlooksick #disabledandcute #invisibleillness #bisexualgirls #girlswholikegirls #dollswithdye #bettyboop #endometriosis #potsie #posturalorthostatictachycardiasyndrome #snapchatfilter #gerd #happyholidays #happiness #chronicallyill #spoonielife #spooniegirl #badday #ihatedoctors #margesimpson #homersimpson #girlswithplugs
Looking forward to the next time I can get up and use my herbs. Having some in your kitchen is the easiest and cheapest way to get the benefits of herbs, and the joyful scent and flavor is a pleasure. The also do double duty helping clean your air! At the top of my list of "won't be without." #herbgarden #organic #indoorplants #spoonie #indoorgarden #naturalmedicine #mecfs #fibromyalgia #chronicillness #chronicpain #migraine #insomnia #microgreens #invisibleillness #vegan #ibd #ibs #guthealth #plantmedicine #naturopathicmedicine #pnwwonderland #islandlife
Scenes from DC: pre arrest @senlisamurkowski’s office, “we can’t come back to talk about this next year because we’ll be dead” and I wasn’t kidding. No Medicare-part-B-covered $1500/month feeding tube formula, no more Kati. #killthebill #GOPTaxScam
Liam's nursing classes are going good. Today was his "paws" on lab to learn how to help Brian draw 5ml of glutathione with 15ml of saline 💉💉. Animals are amazing healers. They have a special way they just know how to comfort you. 😺😻🐈💚💚💚
ITP is truly a roller coaster. Medications like Nplate that make me have insomnia, and then having a low platelet makes my body extremely tired sometimes. It's a weird mix feeling but I really don't have a choice but to fight each day to live a normal life. I AM STRONG! #Purple4Platelets #ITPwarrior #BleedingDisorder #ChronicDisorder #ChronicPain #Pain #ChronicITP #Chronicillness #ITP #LowPlatelets #Platelets #StayStrong #Strong #StayPositive #PositiveVibes #Faith #Hope #FindaCure #Autoimmune #InvisibleIllness 💜💪🏽