Week 2 of 22 is in the books.
Yesterday's visit was nothing like last week's non-stop, go-go-go. Chemo itself was only about 15-20 minutes long because this was one of his single med weeks, and he spent almost the entire time we were in clinic playing Skylanders except for his jaunt to see today's Buddy Brigade pup.
Yesterday's BIG thing was getting his Beads started. We began with the very beginning of this journey with his ED visit up through yesterday. There are beads for the ED, for his two admissions and discharges, his initial surgery and sedation, his ultrasound, the CT scan, his port and sedation for that, the 3 chemo meds from last week and the one from yesterday. There's beads for the hospital, meeting with the chaplain, school consult, dietician, child life, the buddy brigade and childhood cancer awareness. We're missing the social work and lab beads because they'd run out. We've been in this 27 days, and look how much has been done.
Everyone asks how we are. Honestly? We are fine. I am tired. I am drained. But neither is because of the diagnosis, the treatment, or the changes in our lives. Our medical team is AMAZING. Our oncologist treats me as a team member, with respect to my medical knowledge and my knowledge of my kid. They are available to me 24/7/365.
What we're dealing with is an uncommon childhood cancer. 100% of Rhabdomyosarcoma cases are treated with chemotherapy. Joey is STAGE 1, GROUP 1 (i.e. the furthest thing from terminal possible). And we're dealing with it just fine.
#pediatriccancer #childhoodcancerawareness #rhabdomyosarcoma #cancermom